Close to the Heart
Expert care, strong medical insurance help Duke family in time of heart transplant crisis
Close to the Heart
Expert care, strong medical insurance help Duke family in time of heart transplant crisis
Audrey Gibson鈥檚 summer of 2024 was highlighted by an end-of-school party at Jordan Lake, driver鈥檚 education classes and a Green Day concert in Nashville.
In between were simpler joys like laps around her Apex neighborhood walking Zoey, her family鈥檚 energetic German Pinscher, and hours 鈥 maybe too many, she admits 鈥 on her phone, texting friends and swiping through Instagram videos.
Close to the Heart
Expert care, strong medical insurance help Duke family in time of heart transplant crisis
鈥淚鈥檓 very thankful I get to do these things,鈥 said Audrey, 16, a junior at Apex Friendship High School.
Audrey, the daughter of Anna Gibson, a 老牛影视 Grants & Contracts Administrator, had known for several years that she was born with a flawed heart. Scarred and weak, her heart kept her alive for 15 years before it failed last summer, giving her a special appreciation for every little thing that comes with being 16.
鈥淪ometimes my brain disconnects from it, like when I hear about all of the stuff that happened to me, I鈥檓 like 鈥極h yeah, that did happen,鈥欌 Audrey said. 鈥淚t wasn鈥檛 a pleasant experience, but it happened. Instead of pitying myself, I have to be like, 鈥業鈥檓 grateful to be here. I鈥檓 grateful for all of the doctors, supporters, friends and nurses who helped me.鈥欌
In 2023, Duke set a national record with 161 heart transplants, including Audrey鈥檚 remarkable case. Her journey highlights the dedication and expertise of Duke鈥檚 doctors, nurses, and coordinators, as well as the unwavering support from her family, friends, and caregivers who bolstered her spirit during a long recovery.
And with Duke鈥檚 , the Gibson family avoided mountainous medical expenses. The final cost of Audrey鈥檚 transplant and hospitalization was roughly $3.9 million. The itemized breakdown of charges covered 288 pages. But with the family鈥檚 Duke Select medical plan, they only had a $600 copay.
鈥淎fter everything, our lives haven鈥檛 changed,鈥 Audrey鈥檚 mother said. 鈥淎udrey just has a heart that works and a better quality of life. If you have the support you need, you can get through anything and move on.鈥
for Duke鈥檚 medical, dental, and vision plans, as well as health and dependent care reimbursement accounts, runs from Oct. 14 to Oct. 25, underscoring the importance of having comprehensive benefits. Reviewing your medical plans ensures that you or your loved ones are prepared in a time of crisis.
鈥淵ou can鈥檛 predict what happens in life, so when our employees and their families face stressful situations, we want to ensure that resources are in place to help lessen their burden,鈥 said Antwan Lofton, Vice President for Duke Human Resources. 鈥淲hen we make decisions about our benefits, we try to think of every possible scenario that could impact our employees鈥 lives. They鈥檙e not just employees, they鈥檙e part of our family,鈥
Fears Realized
On Monday, Aug. 7, 2023, Audrey鈥檚 heart didn鈥檛 have much left.
Since January, Audrey felt weak and her mind seemed cloudy. Things got worse over the summer. She fought what she thought was a stomach illness during a trip to the Outer Banks. Later, while shopping for supplies for marching band camp, she collapsed.
The fainting spells and nausea continued for weeks, leading to multiple hospital stays, with doctors unsure of the cause, until that Monday night. Lethargic and unable to keep anything in her stomach, Audrey鈥檚 parents rushed her to 老牛影视 Hospital, where cardiologist Dr. Michael Carboni determined the cause.
Audrey鈥檚 heart, a source of worry for years, was in the advanced stages of failure.
In 2018, doctors in Seattle, where the Gibsons lived, diagnosed Audrey with hypertrophic cardiomyopathy (HCM). The condition makes the heart鈥檚 muscles thick and stiff, restricting pumping capacity. Since then, the Gibsons kept close watch on Audrey鈥檚 health.
For years, Anna ensured a portable defibrillator in a floral pink backpack went wherever Audrey did.
When the family moved to Apex, North Carolina, in 2019 for Audrey鈥檚 father鈥檚 job, they researched cardiologists and found that Duke鈥檚 doctors, and medical benefits for employees, were considered among the nation鈥檚 best.
Anna, who got Audrey to Duke doctors in 2019, joined Duke鈥檚 staff in 2022.
鈥淚 needed to work at Duke because the benefits were so much better,鈥 she said. 鈥淚 needed comprehensive benefits for Audrey. It was my hope when we moved here to get a job at Duke.鈥
Once in Duke鈥檚 care, genetic testing revealed Audrey had Danon disease, a rare condition that causes heart muscles to break down, requiring many patients to get heart transplants. She had an internal defibrillator implanted in her chest, helping her maintain a regular heart rate. With Audrey improving, Anna could leave the backpack with the defibrillator at home. Audrey鈥檚 heart, it seemed, could last a while longer.
But last August, Carboni explained that Audrey鈥檚 heart had given all it could. She needed a transplant quickly.
鈥淲e were not prepared for it,鈥 said Audrey鈥檚 father, Arian Gibson. 鈥淥ur mentality was, 鈥楬er heart鈥檚 not great, but it鈥檚 still functioning, right?鈥 Well, now it wasn鈥檛.鈥
The Right Heart
Once hospitalized, Audrey鈥檚 top priority was buying enough time to find a new heart. Duke doctors tried 26 medications and three surgeries to attach pumping devices to keep her heart working. But two weeks in, hoses and pumps at Audrey鈥檚 bedside did the work of her heart and lungs.
Her parents alternated nights at 老牛影视 Hospital. One parent kept vigil beside Audrey while the other made the drive home to Apex for a brief respite. The drive home was one that Audrey鈥檚 parents were convinced they would make again with her.
鈥淟osing Audrey was just never an option. I knew a heart was coming,鈥 Anna said.
Pediatric Heart Transplant Coordinator Kelly Iannello managed the quest for Audrey鈥檚 new heart. Given her vulnerable state, Audrey had priority to claim any donor heart that was deemed a potential match. But there was no guarantee of a quick match.
When donor hearts become available, a liaison service contacts members of with information about their location, size and the donor鈥檚 age and health history. Duke doctors must quickly determine if a heart is a good match. If not, the heart is declined.
鈥淎ll I can tell patients is that, when their heart comes, it will be the right heart for them,鈥 Iannello said.
On the afternoon of Wednesday, Aug. 23 鈥 nearly two weeks after Audrey was listed in the recipient registry 鈥 Dr. Carboni walked into Audrey鈥檚 hospital room wearing a sly grin.
鈥淲hat are you guys doing this weekend?鈥 he asked.
Anna didn鈥檛 need to hear anything else and excitedly wrapped Dr. Carboni in a hug. A matching heart had been found.
Two days later, a Duke surgical resident boarded a private jet at Raleigh-Durham International Airport and zoomed into the clouds. A few hours later, the jet returned carrying Audrey鈥檚 new heart.
At that moment, Duke Pediatric Heart Surgeon Dr. Ziv Beckerman was prepping Audrey for the transplant. Over the next several hours, Beckerman removed Audrey鈥檚 old heart, which was still laden with metal pumps and tubes, and connected her arteries to her new heart.
鈥淭he heart we got her was terrific,鈥 Beckerman said. 鈥淚t got back to work immediately.鈥
In between phone updates from an operating room nurse, Audrey鈥檚 parents offered silent prayers at 老牛影视 Chapel and played cards 鈥 specifically, hearts 鈥 in the hospital.
Sometime after midnight on Saturday, Aug. 26, Dr. Beckerman told Audrey鈥檚 parents that the transplant was successful and that the parents could go home.
Exhausted, the Gibsons traveled empty roads illuminated by a nearly full moon. Nearing their neighborhood, they glimpsed a cloud through the treetops. Illuminated by moonlight, it was shaped like a heart.
鈥淲e had to check with each other to make sure we both saw it,鈥 Audrey鈥檚 father said. 鈥淎nd then we started bawling.鈥
The Road Back
Audrey had her new heart. She also had a long way to go.
It took her two days to wake up and nearly a month for the mental fog from nearly three weeks of sedation to clear. Audrey lost over 30 pounds and needed tubes to eat, breathe and drain fluid from her chest. Her mother said Audrey was like a 鈥渇rail little bird.鈥
To keep her body from rejecting her new heart, Audrey took medication that essentially shut off her immune system, leading to a series of infections, pancreatitis and pneumonia. The complications kept her in the Pediatric Cardiac Intensive Care Unit on 老牛影视 Hospital Central Tower鈥檚 third floor for nearly five months.
Audrey鈥檚 parents remained fixtures in her hospital rooms.
Her mother worked out a reduced schedule with her manager, Alison Hriciga on the Campus Grant Contract Management Team, so she could be there for Audrey.
鈥淲e needed to help her hold it together,鈥 Hriciga said.
Audrey had her spirits lifted when her younger brother, Alex Gibson, recorded a video of his band covering 鈥淪ay it Ain鈥檛 So鈥 by Weezer, Audrey鈥檚 favorite band. And in October, Apex Friendship High School鈥檚 marching band, the Patriot Regiment, visited the hospital to play a brief outdoor concert for Audrey, who watched from a wheelchair.
Audrey also leaned on 老牛影视 Hospital鈥檚 team, a group of caregivers who tend to young patients鈥 mental and emotional well-being.
Child Life Specialist Rylee Neal bonded with Audrey while painting her nails 鈥 Audrey favored shades of aqua, magenta and yellow 鈥 or finding costume supplies for the unit鈥檚 Halloween celebration 鈥 Audrey was Velma from Scooby-Doo.
When frustrated with hospital life, Neal had Audrey write her feelings on paper and then helped her toss water balloons at each hand-written annoyance in a hospital courtyard.
鈥淪eeing Audrey was the first thing on my to-do list because, selfishly, I wanted to spend time with her, but also, I knew she needed support,鈥 Neal said.
Audrey enjoyed visits from music therapists, who helped her belt out songs on her baritone horn, and Cassie, a therapy dog that curled up in bed. She befriended fellow patients, especially a 14-year-old heart transplant recipient who is now one of her closest friends. Audrey recalls the two of them sitting in the unit鈥檚 lobby, sharing conversations about what they missed most about their lives back home.
鈥淲e didn鈥檛 talk about the future,鈥 Audrey said. 鈥淲e didn鈥檛 think that far. We were like, if we talk about it, we might jinx it.鈥
On Dec. 14, doctors deemed Audrey well enough to leave. That day, she joined her parents on their now-familiar drive back to Apex. For the next few weeks, Audrey struggled to walk upstairs and moved deliberately, a habit born of five months spent connected to machines. But she was thrilled to be home.
By February 2024, Audrey鈥檚 post-transplant quarantine ended. She returned to school and friends could once again visit the Gibson home, filling it with happy voices and a sense of normalcy.
Audrey still checks in with Dr. Carboni to see how her heart is functioning. But with the help of Duke鈥檚 caregivers and benefits, the crisis that rocked the Gibson family is just one chapter in a story that has many more to go.
鈥淓verybody has their thing that happened to them. This is mine,鈥 Audrey said. 鈥淚t shaped who I am, but it鈥檚 not all of me.鈥
Medical Benefits Open Enrollment 2025
for medical benefits and reimbursement accounts effective January 1, 2025, begins Oct. 14 and ends Oct. 25.
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